Well friends, things have moved fast since the last blog update.
I am sorry to report that the PET scan did indeed show cancer activity. It is showing in several areas in my abdomen, at the initial site, as well as spots around my liver, which is hard to say the depth of them from the scan alone. This, of course explains why I've been feeling the way I have. Even though my blood work still looked good, it's obvious that the CEA level will not be an accurate guage. He told me all along that it can be an ambiguous number.
I found out Monday evening. Doug and I went to see Dr. Neville yesterday. He had me start chemo today. One bright spot is that I won't have the drug that causes neuropathy and the cold sensitivity. That was the most irritating side effect last time. They are replacing it with a different one, which comes with it's own side effects which I hope will be more manageable than dealing with neuropathy.
The current plan is that I have 4-6 treatments (2 week intervals) then another scan. If it goes back into remission I will more than likely do the IPHC surgery we were going to do last May. We've already contacted the doc up there and he concurs that we do chemo first and get it in remission. My being a candidate for this surgey will be particularly dependent on the cancer not being in any other organs. Only the liver appears to be involved at this point.
I am sorry to report that the PET scan did indeed show cancer activity. It is showing in several areas in my abdomen, at the initial site, as well as spots around my liver, which is hard to say the depth of them from the scan alone. This, of course explains why I've been feeling the way I have. Even though my blood work still looked good, it's obvious that the CEA level will not be an accurate guage. He told me all along that it can be an ambiguous number.
I found out Monday evening. Doug and I went to see Dr. Neville yesterday. He had me start chemo today. One bright spot is that I won't have the drug that causes neuropathy and the cold sensitivity. That was the most irritating side effect last time. They are replacing it with a different one, which comes with it's own side effects which I hope will be more manageable than dealing with neuropathy.
The current plan is that I have 4-6 treatments (2 week intervals) then another scan. If it goes back into remission I will more than likely do the IPHC surgery we were going to do last May. We've already contacted the doc up there and he concurs that we do chemo first and get it in remission. My being a candidate for this surgey will be particularly dependent on the cancer not being in any other organs. Only the liver appears to be involved at this point.
For those who forgot what IPHC is, it stands for Intra-Peritoneal Hyperthermic (heated) Chemotherapy. So they go in, cut out any remaining cancer that's visible, then flood the abdominal cavity with heated chemotherapy, which is supposed to kill cancer cells better than the room temperature stuff. But, we're a ways off from that decision. If you really want to know about the surgery, just type in IPHC and you can wade through the webpages.
Please pray for peace in my spirit. I've been so distraught. Also, for my family, kids. It's hit everyone pretty hard. I have to say that I can already feel the strength in your prayers. I woke up this morning not with dread, but with a sense of resolve to do whatever it's going to take to prolong my life. The treatment went well today. My blood pressure stayed down, and thus far I'm feeling ok.
I want you to know how valuable and powerful prayer is! I'm more and more being blown away by God's love that is pouring through you, dear ones. You have truly been His hands.
We will keep you posted. If not before Thanksgiving, I hope you all have a wonderful holiday with your families. Savor these moments. Make them unforgettable.
Jane
I want you to know how valuable and powerful prayer is! I'm more and more being blown away by God's love that is pouring through you, dear ones. You have truly been His hands.
We will keep you posted. If not before Thanksgiving, I hope you all have a wonderful holiday with your families. Savor these moments. Make them unforgettable.
Jane
5 comments:
We're praying hard, Jane!
May God Bless You!
Cindy K
Jane, so sorry to hear this news! Prayers haven't stopped on this end. I'll be praying for peace and strength for the days ahead.
hugs, Laura
Dear Jane:
If there is anything I can do for you, if you want me to drive you somewhere, or run an errand, please call me at 758-6668, and if I am not home, please leave a full message.
Just know that every week I put your name in for prayers for healing. May God be with you and yours. Love, Regina
Hi Jane,
I am down in Ca nursing my mom, and I just read this. I will be praying!
Carol W.
Jane my thoughts are with you and your family and yes even my prayers, though I am a bit rusty on praying maybe one more prayer will help. Even through the devastation of this news your willingness to fight this disease is inspirational. When I have considered giving up on chemo over the last month I have though of you and kept going. May God listen to the prayers of all those who love you. Roanna
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