Tuesday, May 6, 2008

One Clean Refrigerator

Well, hope you don't mind a little dark humor; but does anyone out there know what the mold spore Cladosporium elatum looks like? Come visit our refrigerator!

Today, Jane's sister Terry and my sister Pam took EVERYTHING out of the frig and cleaned it thoroughly.

After discarding the gross, moldy, smelly, unidentifiable items, the refrigerator looked like this:

Other than ridding the home of some interesting smells, the day was rather uneventful, as Jane had a pretty good day. She is becoming more sleepy, and much weaker; which I am told are some of the early signs of decline.

We took some time to read all of the note cards that everyone filled out at Woodstock's, and our hearts were warmed by the loving words each of you wrote.

Some were written by younger kids; one which stands out said, "Dear Jane, I am sorry you are so sick. But when you die, you get to meet the Lord! He will be happy to see you." Indeed, He will.

On the reverse side of the note was this image:

God sure DOES look happy to see her, huh?

Monday, May 5, 2008

Fabulous Fund-Raiser

Today, there was an incredible outpouring of support for Jane and my family. But first, let's back up and retrace the steps leading up to lunch today . . .

Last night we were watching a movie, and about 9:00pm Jane said, "I'm tired" and I helped her settle in for the night. During those moments, she complained of a pain just inferior to her right clavicle (below the collarbone, for non-A&P types). The pain steadily worsened until it was about a 7 on a scale from 1-10 (not a good place to be). So I called the Hospice nurse, and she advised me what to do. Jane wanted to know what might be going on, and the nurse said, "without looking inside, it's hard to tell." She was not being flippant at all, just reiterating that at this point there will be no more X-rays, no more CT scans, no more blood tests, etc.

Hearing that was a good reminder to both Jane and me that our objective is to manage the symptoms, and keep Jane as comfortable as possible. So after about 2 hours, we had her pain under control, and she was sleeping soundly. Starting last night I have begun to set my alarm for 12:00 midnight to wake up and administer her medication. Then, back to bed and reset the alarm for 4:00am for more medication. That worked very well last night. The next interval was at 8:00am, and we all slept close to that time.

The Hospice nurse and social worker visited today at 11:00am and we had a wonderful chat. Everyone is on the same page, and Jane is at peace with how everyone else is doing. She's a remarkable woman; for most of her anxiety has to do with how me and the kids, and how all of you, yes, how all of you are doing. She is so concerned about everyone else, and wants everyone to know that she's is ok, and at peace with things.


Jane was bummed out that she could not be at Woodstock's today. We were told that both at lunch, and at dinner, the line for ordering pizza was out the door!

My sister Pam (who knows EVERYONE in Corvallis and Albany) told us who was there, and we were overwhelmed with your love! I brought a basketfull of cards home at lunch, and I understand there are more cards from tonight. Jane and I were touched by each card that you wrote. Thank you everyone for demonstrating your love to our family.

We could not do this without each of you.

Sunday, May 4, 2008

A New Body

As terrifying as yesterday was, last night was a very good night for Jane. Slept almost through the whole night, with little to no pain.

Today, I helped Jane take a shower, and when I looked into her eyes, it hit me. "Soon God is going to give you your glorified body; I can only imagine how you will look." I hope that I recognize you." We both started to weep for joy, thinking of what that will be like.

As she sat there soaking in the warm, soft spray of water, making "yummy sounds" (you'd need to have watched "Young Frankenstein" to get that) she remarked that the first thing she is going to do is seek out The River, Whose Streams of Gold, Flow From the City of God.

What a simple, yet absolutely wonderful and necessary thing water is. Most of the rest of us take that for granted. I for one will never again.

Saturday, May 3, 2008

Hitting the Wall

Today I hit the wall. It's no big surprise I guess; but it caught me off guard. Jane had a fairly good night last night; up just one time, but for about an hour and a half. We all "slept in" this morning until 6:45am.

By 10:00am, Jane was really hurting. Lost a bunch of fluid, went back to sleep, woke up two hours later, lost a bunch of fluid again. By 4:30 this afternoon, she was in excruciating pain; so we called hospice and the nurse came out. Just moments before she arrived, Jane got rid of everything in her stomach (a huge amount) and immediately felt 100% better.

The nurse talked with us for awhile, and will come over tomorrow to speak to the family about the dying process. She also explained that even though the IV infusions seemed to make Jane feel a little better in the short term, in the longer term they were causing her more harm than good.

My son, daughter in law and granddaughter stopped by one more time before going back home to Michigan; my brother came from L.A. last night, and leaves early tomorrow morning. The whole immediate family went out for lunch, stopped by afterward, and everyone filed in to Jane's room, one by one to say goodbye; some just for the day, others for the rest of their lives.

After everyone had gone, I melted down. Went and laid down for a much needed nap. Jane is resting comfortably this evening, and hopefully will continue that way through the night. As always, we covet your prayers.

NOTE: Although the text is the same, I changed the pictures between my blog and Jane's. The photo in my blog expresses how I felt, but seemed a little too violent for hers.

Friday, May 2, 2008

One Step Forward . . . Three Steps Back

Well friends, as good as last night was, today was just the opposite. It started out really well, and Jane asked to have another IV transfusion, so I started her at about 9:30am, and went out to have lunch with my kids and granddaughter. Got home about 11:00am.

Checked in on Jane and some dear friends, Tom and Terri had come over to pray with her. I left Jane with them, and the rest of us piled in the cars and drove to Oaklawn Cemetery, where my mom was buried about 15 years ago.

We've decided that Jane will be buried there. It was pretty tough on our son Matt; and kind of odd for the rest of us to be thinking about that while Jane is still here. But it's something that has to be done. It's really pretty there. We thought about cremation and scattering her ashes somewhere, but when it came down to it, we were faced with a dilemma about where we would "go" to visit her later, place flowers, remember her, etc.

So I called Oaklawn last week and found out that they give grave sites to Veterans (which I am) and so we thought that was pretty good. It's a nice place, in a quiet neighborhood, and well maintained. This whole thing is kind of strange.

When we got back, Jane asked me to discontinue the infusion, which I did. About an hour later, she was feeling poorly, and eventually got sick again. First time for us during daylight hours, so it's something new. She slept for a few hours afterward, and then by 6:30pm, she started to get sick again. Well, this is new. Twice in one day.

During the second session of being sick, Jane sat back in her chair and kind of looked away over my shoulder and said, "Ok." Then she looked at me and said, "I think it's going to be soon." I asked, "You mean soon now, or just soon?" She said, "Just soon."

She is resting well now. This evening after she had settled down, I got a basin of hot water, filled in with Epsom salts, and she soaked her feet while we watched "Across the Universe." Near the end of the movie she said, "I'm tired" so I took her to her chair in the bedroom, got her settled in, and said goodnight. I hope and pray that it is again this night.

Good Night!

And I don't mean the street in South Corvallis . . .


nor do I mean the Brave Sir Lancelot . . .

Jane had a very good night last night. Slept from 10:00pm until about 1:30am. Woke up, applied some more (anti) nausea creme, back to sleep; woke again at 4:45am. No vomiting all night, and just a little nausea.

Jane feels like having another IV infusion today, so that's a good sign (no pun intended) too. I am thinking that keeping things quiet around here yesterday and everyone's prayers, helped a lot.

Let's keep praying for a continued good day today. Thank you prayer warriors!

Thursday, May 1, 2008

Please Don't Leave Me

Hi friends. Jane had a rough night and morning today. We were up at 1:30am again, doing the (now) normal routine. We both went back to sleep about 2:00am, but Jane said she did not feel like she was completely emptied; a feeling that she actually looks forward to these days.

About 6:00am, her sister woke me and said, "Jane needs your help." I went in and found Jane sobbing and holding her stomach. I asked, "What's going on," and she showed me her pain patch; it had fallen off some time during the night, and we don't know how long she'd been without medicine.

I called hospice, reapplied the pain patch with more tape, and waited for them to arrive with the "emergency kit." While we were waiting, Jane started to cry and I asked her, "What's going on?" She said, "Please don't leave me." I fell apart. "I could never leave you." I said. I was then reminded of the words of Jesus, "I will never leave you, nor forsake you."

When the hospice nurse arrived a few minutes later, we were able to get her pain back under control, and she rested comfortably for several hours this afternoon.

We had a nice, quiet day today; the phone did not ring as much, and there was less traffic than the past few days. I feel badly because we even had to restrict a visit from Brent, Shelly, and Lily. Thankfully, they understand.

Jane is resting now, and we are asking you again tonight to partner with us in prayer for peace, and a full night's rest. One more thing: Jane has been having nightmares of sorts, and would also ask you to pray that God will fill her dreams with visions of peace, loveliness, and holy things.